Capture your experience
Express changes, concerns, and questions when you have the capacity.
Neverlost Systems
Patient-side AI software that makes complex healthcare needs easier to communicate.
We’re developing tools to help patients express what’s happening, identify what matters for their care, and prepare information they can review and choose to share.
Starting with POTS and EDS patients and families. Designed to work alongside existing healthcare systems.
The communication gap
Communicating complex needs takes time and energy.
Patients need to explain changing symptoms, how daily life is affected, and what help they need. Fatigue, brain fog, and limited appointment time can make that difficult.
Healthcare professionals need clear, relevant information to understand those experiences and determine how to help.
Our guiding question
What work can we take off the patient’s plate?
We’re building Neverlost to reduce how much patients have to organize, remember, and reconstruct as they move through care.
The initial product
Making that communication easier
We’re developing patient-controlled tools to make complex healthcare information easier to capture, prepare, and communicate.
Prepare relevant information
Bring your experiences and supporting records into a draft for a particular care interaction.
Review and choose what to share
Correct suggested information, keep uncertainty visible, and decide what others receive.
Neverlost OS — In Development
One patient-controlled context layer.
Neverlost OS is the shared infrastructure we’re developing to carry important context between care interactions. The goal is to keep information connected to its sources, preserve uncertainty and corrections, and support patient control over what gets shared.
Three working prototypes informing that development
Working prototype
Neverlost V2
Organize and examine source-linked evidence in context.
Compare records, review what the evidence supports, and trace conclusions back to their sources.
Explore the prototypeWorking prototype
Case Navigator
Turn reviewed information into timelines and referral or disability preparation drafts.
Keep sources and unresolved questions visible, with human review before information moves forward.
Explore the prototypeWorking prototype
Full Human Pathway
Coordinate the person’s broader situation and prepare the next handoff.
See what can be prepared now, what still needs clarification, and who needs to review the next decision.
Explore the prototypeShared integration and commercial validation remain in development. Public demonstrations use fictional / synthetic cases.
Initial focus
Starting with POTS and EDS.
We’re beginning with POTS and EDS — a highly engaged patient community that has already built strong networks for sharing knowledge, experiences, resources, and support while navigating complex, fragmented care.
January–March 2027
Pilot 01: Patient value
Test one focused workflow with POTS/EDS patients to understand whether it makes care preparation and communication easier.
April–June 2027
Pilot 02: Preparing for organizational adoption
Refine the workflow using Pilot 01 findings and prepare it for use within healthcare organizations as readiness and funding allow.
July 2027 onward
Expansion
Test and validate new workflows, guided by findings from the first two pilots and as readiness and funding allow.
About
Why I built Neverlost
Jeff Summerhays, Founder
I started Neverlost after seeing how much work it took to communicate my own complex health needs. Even with a knowledgeable care team, I still had to bring information together and explain what was happening before others could help.
I began documenting what helped: organizing records, preparing for appointments, and connecting my experiences to the questions my providers needed to answer.
That process became the starting point for Neverlost. I’m building software to make that preparation and communication easier for other patients and the people supporting them.
January 2027 pilot
Join the waitlist
Get updates on Neverlost and opportunities to take part in our POTS/EDS pilot.